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Showing posts from December, 2019

Brutal Christmas week, super tough to stay smiling!

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**LOA Extended to January 31** This week has been BRUTAL. Lots of inner leg and in inner arm pain, waking up multiple time a night to apply ointment, not alot of sleep, lots of anxiety and trying to keep sane and clean and safe. Don’t need  infections or cracks on hand and feet. Foot soles and palms of hands have completely peeled which was an experience. Now they are constantly lightly peeling but I have to keep them moist with vaseline/Aquaphor, otherwise they will peel and crack, and that is not going to be uncomfortable if that happens. Trying to keep upper thighs wrapped as well but as I shed, that turns into a sandpaper-like feeling. * just a note of caution, while I strive to maintain decorum, there may be images and language that is of adult nature *

To wrap or not to Wrap!

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Last night I took a bath with MCT Oil and Skin So Soft (Avon), felt great and skin looked good. Applied Betha and Aquaphor and went to bed (did not wrap with Stretch Tite). Had a rough night sleeping as inner thighs and elbow areas were tender and burning. Woke up early and applied Betha and wrapped. So scaly! So terrible looking and it feels like it looks! * just a note of caution, while I strive to maintain decorum, there may be images and language that is of adult nature *

FFS the feet and ankles (kankles) are so not comfortable this holiday season! What iPad??

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OMG My feet did not hurt this AM from the swelling pain, so I am goin to assume that I am on way out of the feet and ankle swelling business (for now).For the past week I when I got out of bed I had to pause because if it did it too quickly my feet felt like they were going to give out from under me. The pain and pulsations from the swelling was terrible. I have tried some other avant-gard solutions for PRP. I have for the last 2 days, in order to maintain moisture, wrapped my arms, legs and feet in saran wrap (Stretch-tite from Cosco, I think Smart and Final carries it as well) after I slather on all of my ointments + Betamethasone DP Aug .05% on areas that are severely burning like forearms, inner thighs and inner calves and Aquaphor everywhere else. I keep everything together with compression pants and arm bands. Same with my peeling feet and of course Nitrile gloves on my hands with the tips cut off. Feels very Frankenstien-ish but it also seems to be helping ALOT. Oh ...

Burn Baby Burn, oh my hooves!!!!!!

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OMG my feet’s soles are now peeling and it’s GROSS and it smells. I wrap my feet in produce bags after slathered with Aquaphor in order to keep them from cracking, but, WHOA, when I take those bags off in the AM it is STINKY. Ankles are still swollen, but soles are slowly being shed, and as you can see from the pics, the skin that is being shed is off color and thick, the skin underneath is very tender. As the photos indicate legs are still red and scaly, burning and shedding when Aquaphor dries up all in all still quite itchy, burning and sheddy. * just a note of caution, while I strive to maintain decorum, there may be images and language that is of adult nature *

Christmas is coming, my 53rd Bday is around the corner and I'm dealing with this horse shit!!!!!!

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**I was placed on a LOA as of December 2nd** Lots of shedding, arms are dry and inside elbows and inside and outside armpit area very sensitive, small amount of bleeding in those areas is common, sill very itchy and when flexing arm those areas are super “burny” feeling Shedding is not limited to arms. Legs are shedding as well, must wear compression pants to keep skin in Ankles and feet still swollen, have to wear compression socks in order to keep swelling down, I also have to elevate ankles several times a day to reduce swelling * just a note of caution, while I strive to maintain decorum, there may be images and language that is of adult nature *

OK FREAKY shit happening now ! ! ! !

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I am turning more purple and I'm freaking out just a bit, continuing treatments, pills and ointments but this is really fucking CRAZY!! I look like ACID was thrown on me and that is not the case!!! * just a note of caution, while I strive to maintain decorum, there may be images and language that is of adult nature *