Ouch and Ouch (some photos graphic)

Well leg pain is worse today, but arms are tolerable-

Arm skin is really tight hence pain but tolerable (notice all the hair is gone)-

I hope legs get better so I can walk without pain-










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Off Schedule Post!

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March 5 Hey All So much progress that I had to post. Things are getting better, I am walking again with sweats on, [meaning no more skirts to protect my leg skin]. I was able to get to the market a couple of times this week!! Fatigue is starting to dwindle and I am getting back to normal energy levels [thank GOD]. Still have a ways to go to normalcy, BUT this is HUGE.  Eyebrows are growing back same with eyelashes!!! I am looking so forward to remission that I could spit! I'm well on the way!! Torso shedding like crazy Hands and feet still wrapped daily, but Im told those are the last to heal Leg pain at a Minimum Continuing clean eating, no processed foods at all, 100% fresh, 100% Mediterranean, homemade everything, even pasta! Skin still pink, but that is better than RED OR PURPLE!!!! Continue the prayers and good wishes!! Date Pain Threshold (1-10) Pain Notes   Diet Notes Dr Appts or Medicine Notes Other Notes 2/28/2020 Fri 4 Very
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Happy Friday! New Post layout

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Happy Friday, here is the new post for the prior week, not to worry if something comes up mid week I'll post as usual- This has been a week of ups and downs, but ending on an "up", feeling better after having a rough Tuesday and Wednesday, lots of inner leg pain, due to running around to 2 appts, leg skin just did not appreciate all of the movement, so I took it very easy Weds and Thurs and it paid off. Today is Friday and I am back to a 4-5 in pain which is better that the 8.5 that I had earlier in the week. I think the turnaround has to do with a few things: The Chinese Herbal Tea I am taking No Tylenol, just ibuprofen (body had to get used to that)  Combination of Acitretin and Consentyx Mediterranean Diet Here is last week's log: Date Pain Threshold (1-10) Pain Notes   Diet Notes Dr Appts or Medicine Notes Other Notes 1/31/2020 Fri 4 Costentyx Shot # 3 2/1/2020 Sat 4 2/2/2020 Sun 5 2/3/2
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On the road to remission.......I think!

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And So It Begins . . . .

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June 30 Update

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I just wanted to provide an update- I am doing GREAT My skin has calmed down, still very itchy, but ZERO Pain!!!! Thanks to everyone who sent me good energy and prayed for me, it is working! I am still working remotely, but I am WORKING, and it feels so good!!! I am still dealing with the PRP, but, the effects are less than what they were, still looking pretty ragged, but things are getting better. God will heal me on his time frame and I have accepted that. Again, thanks for all of the good healing energy and prayers, they are working!!!! Feeling good and have looked better, but I am happy to be out of pain and working again!!!!!!!!!!!!!
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Wow there was alot of burning happening last night and not the kind I like! Backs of legs were white hot on fire! Changed 3x to get into something comfortable, clothing just irritated the skin, so I settle for a super large pair of sweat shorts, phew! Diagram shows concentration of pain and scaling and itchiness. Other than this I feel fine, but I can't imagine getting up, showering, applying ointment, getting dressed, driving to the ferry, taking the ferry ride, walking to the office, working for 8 hours the repeat on the way back and that would not even account for applying ointments mid day etc. Too much to even think about especially waking up with burning legs! WHEW!!!! I await stabilization! Aside from the backs of legs the front and back elbows are pretty raw and burning today so I'll have to manage that- Face woke up puffy and scaly with lots of eye goop. Had to wrap arms and calves to make sure ointment stays on skin, back of legs unable to be wrapped as gravity pu
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